Update

Apologies that it has been so long since my last posting!

Anyway, things are going well. Enjoying being back at work, although still missing being at home! Started the new position in a different department this week, although still doing a lot of work for the previous department. This will stop soon though and I will be left to my new role. A bit of a change in direction for me, but something to get my teeth into, having been almost on auto-pilot for the last few years. It will be good to learn something new.

Suzanne continues to improve on LDN - I am still in awe of the way this drug has turned her life around. She still has some symptoms here and there, but nothing compared to those before LDN. And she, together with Sally, has been doing some amazing work in helping the LDN Research Trust. There have been some challenges and obstacles to overcome here and I sincerely hope that their efforts are being channelled in the right direction.

Well, that's it for now and I will try to remember to post more regularly!

LDN First Hand Experience!

Yesterday, I had an awful head cold and felt really rough. Woke up with my eyes sore and swollen and had difficulty breathing properly. That continued all day, so late last night I decided to take 1.5mg of LDN. Well today, after a solid nights sleep, I would say that I am 75% better. Eyes back to normal and breathing fine. Even the headache that has been constant over the last two days, has now disappeared. I could put it down to the 15,000 units of vitamin D3 that I took yesterday, and that may have something to do with it, but I believe that it is the LDN once again working it's magic.
Suzanne continues to improve and is now taking 2.5mg per day. Take a look at the fantastic video she has made to help people to understand the condition. Made with the help of Sally, who has also had amazing results with LDN for her fibromyalgia.

Like putting on an old slipper!

Back to work again today. I had forgotten how much I hate the rush hour! Once I got to work, though, in familiar surroundings and I was straight back into familiar work and plenty of it. Kept busy all day, but did get the chance to wander around a couple of times and saw some people I knew, who all seemed very glad to see me back. The downside is that I really missed my darling wife, having spent so much time at home with her over the last couple of months.
My boy went off to Osmington Bay this morning until Friday. We are both missing him - the house is not the same without him. Just hope he has a good time and doesn't get too homesick!

Hi Ho, Hi Ho....

Yes, I am going back to work on Monday!

Had a conference call this afternoon detailing what is required of me for the first month, before, hopefully, a longer term contract is in place. This is work I have done before, so I know what I am doing.

Really pleased, although I will miss being at home during the day and spending so much time with my lovely wife. But, until we win the lottery, I need to work!

...still waiting, but!

Trying not to get my hopes up, but received an email today suggesting that a job offer may not be too far away now! Requested that I be patient, but that they are very keen for me to join the team. Just a question of agreeing the terms of the contract.
Obviously sounds very promising, but cannot take anything for granted.

Update

Suzanne is continuing to improve day by day, but must still remember not to try and do too much and make sure she gets enough rest. But, in the space of a week, the LDN has worked wonders and she is still on the starting dose. This drug just HAS to be made readily available to everyone who needs it. The problem is, though, that not enough people know that they need it, because they do not know of it's existence. It is a scandal that it is pushed to the background in favour of more profitable treatments. People need to be made aware!

Sally has now received her LDN and has taken her first dose tonight, so I am really hoping that it is as effective for her as it has been for Suzanne. I am very confident that it will be.

Good news tonight, in that the petition for CCSVI has reached it's target, which was 10,000 signatures by the 1st March. Here's hoping that the Government take notice for once!

LDN working it's magic!

Suzanne has had a good weekend - LDN is certainly working for her, but she still needs to go easy on herself. She still needs to rest when she can and not try to do too much too soon.
She has been sick this evening, but I think this was something she ate, rather than any side-effects.

Well done also to Sally for getting out and about today - hang in there until you can get on the LDN - it will be worth the wait.

It's a Waiting Game!

No news on the job front - the money man is now on paternity leave!

More importantly, Suzanne has started taking the LDN. She seems a bit brighter and has been out of bed for most of the day. It's a case of little by little, as the dosage increases. Even if it is only fractional improvements every day, then that is fantastic. Just a matter of being patient, finding the right dosage and not being discouraged by any slight downturn, but I know it will work.

Please sign the petition for CCSVI

CCSVI is a potentially huge breakthrough in the treatment of multiple sclerosis. However, more research is needed and we need the Government to get behind it. So, if you have not already done so, please sign the petition. The aim is to get 10,000 signatures by the beginning of March.

What a difference a year makes!

This time last year, life was pretty rosy in our garden! Nice home, I had a good, well-paid job, my wife was considering moving her successful nail business from home to the High Street and, more importantly, we all had our health. Life was good.
Then, in the Spring, it all started! My father had a heart attack. He was 77 at the time, but never smoked, rarely drank, had a healthy diet and was always fit & healthy. So, it came as a great shock to us all. Fortunately, he survived and has made an excellent recovery.
However, in July, my wonderful wife, Suzanne, was admitted to hospital suffering from numbness in her legs. After extensive tests and a distressingly lengthy MRI, she was diagnosed with relapsing remitting multiple sclerosis. If my father's heart attack was a shock, then this was a sledgehammer blow and something that is very hard to come to terms with. The moment when I walked into the hospital just after the consultant had told her and she relayed the news to me, is something that will live with me forever.
Suzanne, however, was determined to continue with the family holiday we had booked  for October. We went to Florida and had a fabulous time. The sunshine really agreed with Suzanne and none of us wanted to come back home.
But, that was not the end of the bad news. At the beginning of December, I was told that my contract, which had been running for 14 years, would not be renewed at the end of December. Happy Xmas me! For the first time in almost 30 years I was to be out of work. So, a bad end to a really bad year!
But, I am a naturally optimistic person and honestly believe that things will get better for us. Suzanne has recently relapsed again and, with the spare time I now have, between us we have been researching MS and possible treatments. Suzanne decided that she could now face looking deeper, her latest relapse tempting her to reach out for the beta interferons, something that she had been avoiding due to the potential  risks. This despite the persistence of the MS nurses, who are very attentive until you turn your back on the conventional drugs, at which point, they mysteriously vanish! This is because most are paid, not by the NHS, but by the drug companies and, as such, are just glorified salespeople! Anyway, the research steered her in the direction of LDN (Low Dose Naltrexone) and the amazing benefits it has brought to many sufferers of MS, amongst many other autoimmune conditions. You can read more about this on Suzanne's blog. Why is this drug not widely known and prescribed at the first diagnosis? Because the drug companies do not want us to hear aboout it because it is cheap and does not make them any money. I have a real bee in my bonnet about the influence and power that the pharmaceutical companies have. They would rather patients take drugs that maximize their profits, many of which cause side effects that may be treated by more of their expensive drugs! And I can only assume that senior MPs and health executives are receiving back-handers, otherwise why would they not adopt this drug in favour of the vastly more expensive beta-interferons? What is the world coming to when money is deemed more important than the health of millions?
To highlight this, Suzanne's GP, a highly experienced doctor with many MS patients, had never heard of LDN. Fortunately, he is open-minded and, after reading the documentation we had prepared for him, was prepared to prescribe LDN, albeit via a private prescription to avoid the rediculous NHS red-tape. Suzanne should be receiving the LDN sometime this week and we are very confident that this will help her condition enormously.
There are other very exciting research projects underway, including CCSVI and, more long-term, stem-cell therapy. All we need is for the government to take off their greed-clouded spectacles and put their backing behind really helping people.
So, all in all, a bad time, but I cannot even begin to think about feeling sorry for myself. I will always be here to help my wife in any way I can, and I will always be in awe of the strength and courage that Suzanne has shown and her determination to beat this.
The future is positive, both on the health and job front, so here's hoping for a better year for all.